ALS Treat Us Now is the only ALS foundation dedicated to saving the lives of CURRENT patients by gaining them access to potentially effective investigational drugs.
Patients of ALS and other fatal unsolved diseases are routinely told by experts that there is no hope for long term survival. With your help, we can change that outlook for today’s patients. There is no cure for ALS, and the life-span for 90% of ALS sufferers is 2-5 years after diagnosis in the absence of potentially effective treatment.
Yet there are several existing drugs in clinical trials that
are potentially effective treatment. These
drugs have already demonstrated appropriate human safety and early signals of
efficacy in ALS patients.
Smart, well-informed patients see these new drugs as chances of survival. But they
die while waiting for access. The vast majority of patients are ineligible or otherwise unable to participate in clinical trials. There are other ways to allow dying patients access to unapproved drugs when medically appropriate. But these mechanisms are either ignored or perceived as nonviable in nearly every case.
added 4/16/2012 6pm
